24HR DRUM-A-THON FOR THE ILLAWARRA’S CHLOE SAXBY & TWO OTHER CHILDREN
WHEN: 5.30pm Friday July 27th to 5.30pm Saturday July 28th, 2018
VENUE: Corrimal Community Church Hub – 9 Augusta Street EAST CORRIMAL.
56-year-old local church and mission leader Graeme Hush will play the church drum kit for 24 hours later this month to raise awareness and funding support for ‘Saving Chloe Saxby’. Chloe suffers from the rare and terminal ‘Vanishing White Matter Disease. Graeme and his Friends made a commitment a couple of years ago to regularly raise awareness and funding support for beautiful Chloe and her amazing family.
This year, Graeme has added support for a couple of other little mates to the effort, children who are struggling with their own personal health battles and whose families need a helping hand.
The goal is to raise $5,000, you can donate by clicking here and using PayPal
or, deposit directly to Heartland Ministries, BSB 032727 Account # 203307 and identify your deposit with your name and ‘drum’ or the number 4934.
Beau McClinton is a little friend of Graeme’s who is just 18months old and suffers from Ohtahara Syndrome – a rare, drug resistant, uncontrolled form of epilepsy where Beau can experience up to 40 large seizures a day (i.e. 300 infantile spasms & about 7-10mins per seizure).
Michael Bereznai is the six year old son of one of Graeme & his wife Karen’s closest friends. He suffers from a rare childhood lung deficiency known as Neuroendocrine Hyperplasia of Infancy (NEHI). NEHI was only classified in 2005 and there is currently no cure and very little known about the disease. It is characterised by rapid and difficult breathing, low levels of oxygen in the blood, and a high susceptibility to life threatening lung infections.
“I’ve asked some close musician friends to give me some time over the 24 hours so I can play for them. It should be quite a gig. My Church support team will facilitate a variety of fun and entertaining sub-events to occur during the time I’m drumming that we will promote as supplementary draw cards to the event. I am hoping to raise at least $5000 and I am confident that we’ll give this total a real shake with the help of our network of family and friend connections and good people from local businesses who we hope will support through donations and products or services we can auction”, Graeme said.
For general updates and information, and of course, details about how you can sponsor, donate and or support the effort, please visit our event page at https://www.facebook.com/24HrDrumMadness/